AIDSQuest: The HIV/AIDS Survey Library
Appendix E: Selected Bibliography of Research on Validity and Reliability of HIV/AIDS-related Survey Instruments

General
Boerma, J. T. and A. E. Sommerfelt. 1993. "Demographic and health surveys (DHS): Contributions and limitations," World Health Statistics Quarterly. Rapport Trimestriel De Statistiques Sanitaires Mondiales 46(4): 222–2226.

Mills, S., T. Saidel, A. Bennett, T. Rehle, J. Hogle, T. Brown, and R. Magnani. 1998. "HIV risk behavioral surveillance: A methodology for monitoring behavioral trends," AIDS 12(Supp 2): S37–S46.

Pisani, E., T. Brown, T. Saidel, T. Rehle, and M. Carael. 1998. "Meeting the behavioural data collection needs of national HIV/AIDS and STD programmes. A joint IMPACT/FHI/UNAIDS workshop: Report and conclusions." IMPACT/FHI/UNAIDS/USAID.

Saidel, T.J., B. Vuylsteke, R. Steen, N.S. Niang, F. Behets  et al. 1998. "Indicators and the measurement of STD case management in developing countries," AIDS 12(Supp 2): S57–S65.

Knowledge, attitudes, and practices 
Longshore, D., S.C. Hsieh, and D. Anglin. 1992. "AIDS knowledge and attitudes among injection drug users: the issue of reliability," AIDS Education and Prevention 4(1):
29–40.

Seha, A.M., K.I. Klepp, and S.S. Ndeki. 1994. "Scale reliability and construct validity: a pilot study among primary school children in Northern Tanzania," AIDS Education Preview 6(6): 524–534.

Sexual/safer sex behavior 
Catania, J.A., D.R. Gibson, D.D. Chitwood, and T.J. Coates.  1990. "Methodological problems in AIDS research: Influences on measurement error and participation bias in studies of sexual behavior," Psychological Bulletin 108(3):  339–362.

Darke, S., W. Hall, N. Heather, J. Ward, and A. Wodak. 1991. "The reliability and validity of a scale to measure HIV risk-taking behaviour among intravenous drug users," AIDS 5(2): 181–185.

DeHart, D., and J.C. Birkimer. 1997. "Trying to practice safer sex: Development of the sexual risks scale," The Journal of Sex Research 34(1): 11–25.

DiIorio, C., M. Parsons, S. Lehr, D. Adame, and J. Carlone. 1992. "Measurement of safe sex behavior in adolescents and young adults," Nursing Resource 41(4): 203–208.

Ferry, B., J.C. Deheneffe, M. Mamdani, and R. Ingham. 1995. "Characteristics of surveys and data quality," in John Cleland and Benoit Ferry (eds.), Sexual Behaviour and AIDS in the Developing World. London, England: Taylor and Francis, pp. 10–42.

Stanton, B., M. Black, S. Feigelman, I. Ricardo, J. Galbraith, X. Li, L. Kaljee, V. Keane, and R. Nesbitt. 1995. "Development of a culturally, theoretically and developmentally based survey instrument for assessing risk behaviors among African-American early adolescents living in urban low-income neighborhoods," AIDS Education and Prevention 7(2): 160–177.

Weinhardt, L.S., A.D. Forsyth, M.P. Carey, B.C. Jaworski, and L.E. Durant. 1998. "Reliability and validity of self-report measures of HIV-related sexual behavior: progress since 1990 and recommendations for research and practice," Archives of Sexual Behavior 27(2): 155–180.

Care and support 
Dubbert, P.M., J.K. Kemppainen, and D. White-Taylor. 1994. "Development of a measure of willingness to provide nursing care to AIDS patients," Nursing Administration Quarterly
18(2): 16–21.

Berk, R.A. and J.P. Nanda. 1994. "Healthcare needs scales for patients with HIV/AIDS: Construct validation," Journal of Associated Nurses AIDS Care 5(1): 13–25.

Drug/alcohol risk behavior 
Chawarski, M.C., J. Pakes, R.S. Schottenfeld. 1998. “Assessment of HIV risk,” J Addict Dis 17(4): 49–59. 

Quality of life  
Burgess, A., M. Dayer, J. Catalan, D. Hawkins, and B. Gazzard. 1993. "The reliability and validity of two HIV-specific health-related quality of life measures: A preliminary analysis," AIDS 7(7): 1001–1008.

Cella, D.F., N.L. McCain, A.H. Peterman, F. Mo, and D. Wolen. 1996. "Development and validation of the functional assessment of human immunodeficiency virus infection (FAHI) quality of life instrument," Quality of Life Research  5: 450–463.

Cleary, P.D., F.J. Fowler, J. Weissman, M.P. Massagli, I. Wilson, G.R. Seage, C. Gatsonis, and A. Epstein. 1993. "Health-related quality of life in persons with acquired immune deficiency syndrome," Medical Care 31(7): 569–580.

Copfer, A.E., N.M. Ampel, T.E. Hughes, K.J. Gregor, C.L. Dols, S.J. Coons, K. Colgan, and A.W. Wu. 1996. "The use of two measures of health-related quality of life in HIV-infected individuals: a cross-sectional comparison," Quality of Life Research 5(2): 281–286.

Copfer, A.E., M.A.G. Sprangers, N.K. Aaronson, J.M.A. Lange, and F.S.A.M. van Dam. 1996. "A study of the reliability, validity and responsiveness of the HIV overview of problems evaluation system (HOPES) in assessing the quality of life of patients with AIDS and symptomatic HIV infection," Quality of Life Research 5(3): 339–347.

Hays, R.D. and M.F. Shapiro. 1992. "An overview of generic health-related quality of life measures for HIV research," Quality of Life Research 1: 91–97.

Holmes, W.C., and J.A. Shea. 1997. "Performance of a new, HIV/AIDS-targeted quality of life (HAT-QOL) instrument in asymptomatic seropositive individuals," Quality of Life Research 6: 561–571.

———. "A new HIV/AIDS-targeted quality of life (HAT-QOL) instrument: Development, reliability, and validity," Medical Care 36(2): 138–154.

Revicki, D.A., K. Chan, and F. Gevirtz. 1998. "Discriminate validity of the medical outcomes study cognitive function scale in HIV disease patients," Quality of Life Research
7(6): 551–559.

Sullivan, M. 1994. "Cross-cultural validation for quality of life," Journal of Clinical Epidemiology 47(12): 1465–1466.

Wu, A.W., D.A. Revicki, D. Jacobson, and F.E. Malitz. 1997. "Evidence for reliability, validity and usefulness of the medical outcomes study HIV health survey (MOS-HIV)," Quality of Life Research 6(6): 481–493.  

Stigma
Berger, B., et al. 2001. "Measuring stigma in people with HIV: Psychometric assessment of the HIV stigma scale," Research in Nursing and Health 24: 518–529.

Fife, B.L. and E.R. Wright. 2000. "The dimensionality of stigma: A comparison of its impact on the self of persons with HIV/AIDS and cancer," Journal of Health and Social Behavior 41: 50–67.

Herek, G., J.P. Capitanio. 1993. "A second decade of stigma: Public reactions to AIDS in the United States, 1990-1991," American Journal of Public Health 83: 574–577.

Gender-related issues
Morokoff, P. 1997. "The sexual assertiveness scale (SAS) for women: Development and validation," Journal of Personality & Social Psychology 73(4): 790–804.

Pleck, J., F. Sonenstein, and L. Ku. 1993. "Male role attitudes scale," Journal of Social Issues 49(3),11-29.

Pulerwitz, J., S.L. Gortmaker, and W. DeJong. 2000. "Measuring sexual relationship power in HIV/STD research," Sex Roles, 637–660.

Violence
Ballard, T.J., L.E. Saltzman, J.A. Gazmararian, et al. 1998. "Violence during pregnancy: Measurement issues," American Journal of Public Health 88(2): 274–276.

Heise, L., M. Ellsberg, and M. Goettemoeller. 1999. "Ending violence against women," Population Reports, Series L, No. 11. Baltimore: Johns Hopkins University School of Public Health, Population Information Program.        

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