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HORIZONS PROJECT
Diagnostic Study on the Involvement of
People Living with HIV/AIDS in the Delivery of
Community-based Prevention and Care Services
In Burkina Faso, Ecuador, Zambia, and Maharashtra State, India, researchers collected qualitative and quantitative data via individual and group interviews, focus group discussions, observations, service statistics, and a questionnaire.
Key findings included:
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There are four distinct types of people living with HIV/AIDS (PLHA) involvement, identified as: access to services, inclusion, participation, and greater involvement.
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Involvement in nongovernmental organization (NGO) activities can have therapeutic effects for PLHA.
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PLHA involvement strengthens NGOs.
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The socioeconomic context strongly influences PLHA involvement.
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PLHA involvement should not be equated with public disclosure and visibility.
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Greater PLHA involvement requires creating a supportive NGO environment.
The study concluded that NGOs can overcome many of the factors that limit involvement by implementing the following recommendations:
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Promote positive and nondiscriminatory attitudes and policies toward PLHA.
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Build the capacity of PLHA for involvement.
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Offer psychological support, including peer support, to PLHA.
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Provide material support to PLHA with few resources.
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Network with other organizations and services to foster PLHA involvement.
Locations
Burkina Faso; Ecuador; Maharashtra State, India; Zambia
Duration
September 1998–May 2002
Horizons and Population Council researchers
Vaishali Mahendra, Christopher Castle, Ellen Weiss
Non-Council collaborators
Christophe Cornu, Pam Decho (International HIV/AIDS Alliance)
Burkina Faso: Alfred Ouédraogo
Association African Solidarité
Association Laafi la Viim
Appui Moral Matériel et Intellectuel à l’Enfant
La Bergerie-Foi, Univers, Compassion
Association Responsabilité Espoir, Vie, Solidarité +
Ecuador: Doris Herrera, Norma Velasco
Fundación Dios, Vida y Esperanza
Fundación Esperanza
Fundación Siempre Vida
Fundación Vivir
India: Rajiv Dua, Vimla V. Nadkarni, Bindiya Nimla
Project CHILD of Committed Communities Development Trust
Maharashtra Network for Positive People
Salvation Army Mumbai HIV/AIDS Community Development Program
Society of Friends of Sassoon Hospitals
Zambia: Tashisho Chabala, James Sulwe
Copperbelt Health Education Project
Hope Humana People to People
Kara Counseling and Training Trust
Salvation Army Chikankata Mission Hospital
Donors
US Agency for International Development
International HIV/AIDS Alliance
Publications/Resources on this project
Related Project
See Also
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Publications/Resources |
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The Involvement of People Living with HIV/AIDS in Community-based Prevention, Care and Support Programs in Developing Countries: A Multi-country Diagnostic Study (2003) (PDF) "Greater involvement of PLHA in NGO service delivery: Findings from a four-country study" (2002) (full text) (en français) "Studies in brief: Burkina Faso, Ecuador, Zambia, India—PLHA involvement strengthens service delivery, improves health" (2002) (Contact horizons@popcouncil.org for a copy.) |