Horizons > Publications/Resources > Research Summary: Succession Planning in Uganda

RESEARCH SUMMARY

May 2003

The proportion of HIV-positive parents who appointed a guardian increased significantly after exposure to the SP program. Only about half (53 percent) of HIV-positive parents in both study groups combined had appointed a guardian at baseline. Parents reported a number of reasons, such as not knowing anyone willing or able to be a guardian, still being in good health themselves, and not wanting to reveal their serostatus to a potential guardian.

Once the SP intervention was under way, counseling aides in the SP area reported that parents responded very positively to encouragement to appoint guardians. Indeed, there was a significant increase from 56 to 81 percent (p < 0.05) in the proportion of SP parents who had appointed a standby guardian (Figure 2).

Figure 2: Percentage of HIV-positive parents who appointed guardians

There was also a significant increase in the comparison group, from 47 percent to 63 percent (p < 0.05). However, given that there was not a statistically significant difference between the two groups at baseline (47 vs. 56 percent; NS) and that that there was a significant difference between the two groups at the final survey (63 percent of comparison parents vs. 81 percent of SP parents, p < 0.05), researchers concluded that exposure to the SP program is associated with a greater increase in the appointment of guardians. This finding was found to be true after controlling for age, education level, religion, gender, time since HIV diagnosis, time widowed, and district in a multivariate regression model.

After two years in the SP program, parents were significantly more likely to have disclosed their positive serostatus to at least one child. Among orphans aged 13 to 19 years interviewed at baseline who knew that a parent had died of AIDS (n = 40), 85 percent believed that parents should disclose their serostatus to their children. Although 72 percent of parents reported that they were in favor of disclosing their HIV status to their children, the majority (53 percent of all parents) had not done so, often due to uncertainty about how to discuss the topic. Parents and children in favor of disclosure supported it because they valued honesty, talking about how the child could take precautions against HIV infection, and being able to plan for the future.

In planning for their children’s future, many HIV-positive parents realize they have to explain their health situation to family members and need help to do so. Therefore, the SP program facilitates and supports (although does not require) the disclosure process through group counseling, one-on-one support, and the creation of memory books.

There were significant increases in the proportion of parents who had verbally disclosed to a child in both groups (51 percent to 75 percent in SP, p < 0.05, and 40 percent to 59 percent in the comparison group, p < 0.05) (Figure 3). While there was no statistically significant difference between the two groups at baseline, there was at the time of the final survey (75 percent of SP parents vs. 59 percent of comparison parents, p < 0.05), suggesting that the SP program had a greater impact on parental disclosure to children. This finding remained true after controlling in a multivariate regression model for parent's age, education level, religion, gender, time since HIV diagnosis, time widowed, and district.

Most parents in the SP group (13 of 16) who participated in in-depth interviews at the end of the project had disclosed their serostatus to at least one child. Parents usually chose to disclose to children considered mature and able to keep this information secret. Counseling aides and parents alike agreed that disclosure can be appropriate for children over 12, but not for younger children.

In planning for their children’s future, many HIV-positive parents realize they have to explain their health situation to family members and need help to do so. Therefore, the SP program facilitates and supports (although does not require) the disclosure process through group counseling, one-on-one support, and the creation of memory books.

Reasons given by parents for disclosing to their children included wanting to help them prepare for the future, to discuss familial property, and to seek the children’s assistance during times of parental illness. During in-depth interviews, all parents (16 of 16) stated that disclosure can strengthen family bonds and encourage children to take precautions against HIV/AIDS. However, learning that a parent is HIV-positive is never easy, even for children who go on to adapt well. Unfortunately, some parents reported that their children ran away from home (3 of 16) or reacted violently (1 of 16). Thus there may be a need for greater guidance to parents before deciding whether or not to disclose and for ongoing support to children who find out their parents' status.

In planning for their children’s future, many HIV-positive parents realize they have to explain their health situation to family members and need help to do so. Therefore, the SP program facilitates and supports (although does not require) the disclosure process through group counseling, one-on-one support, and the creation of memory books.

Will writing doubled in both groups, but still only a small proportion of parents had written wills. A striking finding at baseline was that many parents feared that, when they died, their property would be taken from surviving family members by non-heirs (community members or relatives). Almost a third (31 percent) of widowed females had themselves experienced property grabbing (compared to only 5 percent of male widowers). Meanwhile, only 23 percent of all respondents had made any arrangements for inheritance of their property, and only 9 percent of parents had written a will. Legal training and will writing were then introduced as part of SP.

In each group, the proportion of parents who had written wills doubled from about one in ten (9 percent SP, 10 percent comparison group) at baseline to about one in five (20 percent SP, 21 percent comparison group) at the final interview. The change over time was significant (p < 0.05) in both groups, but there were no differences between groups at either baseline or at the final interview. Nor were there within-round differences in the proportions who had appointed executors (47 percent of parents in SP and 37 percent of comparison parents at final round of interviews, NS) or in knowledge of women’s and children’s property rights.

Qualitative data collected from counseling aides and parents from SP sites highlight the formidable fears and cultural obstacles faced by the program in trying to introduce will writing (see sidebar). Although there are written laws protecting the rights of women and children to a portion of familial property, customary or traditional law prevails in most of Uganda.

Challenges to Will Writing in Uganda

  • Widespread belief that wills and "preparing for death" will cause death.
  • Traditionally, property is distributed only posthumously, by clan leaders.
  • Traditionally, women and young children do not own or inherit property.
  • Traditionally, wills are verbal, not written.
  • Poor knowledge and enforcement of laws protecting women and children.
  • Low literacy.
  • Limited experience with legal issues among NGOs in rural areas.

Despite these barriers, qualitative research revealed considerable interest and confidence in the value of wills among parents in the SP group, with many reporting that they had written wills as a direct result of program involvement (26 of 69 women and 17 of 32 men in the focus group discussions).

Sub-group analysis of the quantitative data reveal that within the SP group, respondents who reported attending the legal training component of the intervention were more likely to have written wills (25 vs. 12 percent, p < 0.05), to have an executor (54 vs. 38 percent, p < 0.05), and to have discussed property laws with their children (42 vs. 32 percent, NS). This suggests that there may have been a program effect for those exposed and that the findings on the larger group may have been diluted by the fact that not all parents received the legal component of the program.

"Writing a will is one of the most difficult things a person can do in this culture. It is seen as bad luck, a final sacrament. Therefore a rise in will-writing will take place only gradually. People are now realizing the importance of wills."
Counseling aide in Luwero

Some focus group participants mentioned that they had heard of instances in which a will effectively protected a survivor’s property rights, which in turn motivated more parents to write wills. Counseling aides predicted a change in practices would occur slowly but surely.

Counseling aides observed that there was a need to increase will writing among men, whose participation had been limited but is critical to the preservation of familial property. Indeed, male participation in the entire SP program was low compared to that of females. They also reported that wills were more effective when the survivors were adults or older children, and far less so when the survivors were young children. A strong recommendation from many counseling aides and parents alike was to increase community sensitization and to involve local religious, clan, and government leaders in upholding property rights.

Standby guardians appointed by parents are predominantly male, but it is women who ultimately assume much of the responsibility for orphaned children. The research team was only able to contact and interview a limited number of standby guardians because some parents had not yet identified one and because many appointed guardians lived outside the study area. At baseline, the standby guardians were predominantly grandparents, aunts, and uncles. Many of the standby guardians were already taking care of children who were not biologically their own (55 percent of those in SP and 43 percent in the comparison group). This raises serious issues about the capacity of this group to take responsibility for more dependents and about the weakening of the social safety net for AIDS-affected children in the study areas.

More than half (57 percent) of the parents at baseline who had appointed a standby guardian chose a male. Yet, nearly two-thirds (63 percent) of current guardians (i.e., already caring for orphaned children) who were interviewed at baseline as part of the larger study were female (see Gilborn et al. 2001).

This seeming contradiction was explored in the data interpretation meetings with counseling aides, who explained that males, being wage-earners, are the parents’ ideal providers, but that some males appointed as standby guardians are motivated by the prospect of material gain (of parental property or, in the case of girl orphans, bride-price). In some instances, after male standby guardians have taken what they can or discovered there is little to be gained materially, they shirk their responsibilities. In those cases, according to counseling aides, it is the women who take the children in.

Overall, there was little change as a result of the program with respect to the attitudes and behaviors of standby guardians exposed to SP. Indeed the program offered limited opportunities for participation by standby guardians and did not appear to have substantial impact on the small sample interviewed.

SP principles “spilled over” into neighboring communities, suggesting widespread acceptability of SP services. After preliminary data analysis, the research team was puzzled to find that improvements in some outcome variables directly related to the SP program were also found among the comparison group (although often to a lesser degree of magnitude). This unexpected finding was discussed with counseling aides at data interpretation meetings. They explained that news of the SP program had spread across the boundaries of the study areas and that neighboring communities were demanding the same services. Because some of the same organizations and counseling aides work in both study areas, it is possible that they responded to this demand in an ad hoc fashion. This “spillover effect” limits the study’s capacity to deduce statistical inference about the program’s effects. However, it may also be a testimony to the SP program’s appeal and acceptability.

What about the children? The ultimate goal of SP is to ensure a better future for children whose parents are HIV-positive. A two-year study is not sufficient to assess the long-term effects of SP on children once they are actually orphaned. For this reason, the current impact analysis focuses on steps taken by parents and standby guardians exposed to SP to increase the likelihood that AIDS-affected children are better prepared to face the future. Perhaps one of the most important effects of SP occurred among older children, who generally expressed a desire for parents to be open with them about the parents’ HIV-status. Between 1999 and 2001, there was a significant increase in the proportion of older children in the SP group who reported that a parent disclosed his/her status to them (35 vs. 57 percent; p < 0.05).

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This page updated
19 October 2007

  
Publications/Resources

"Succession planning in Uganda: Early outreach for AIDS-affected children and their families," Horizons Final Report (2004) (PDF, 371 KB)

"Making a difference for children affected by AIDS: Baseline findings from OR in Uganda," Horizons Baseline Report (2001) (PDF, 583 KB)

"Making a difference for children affected by AIDS," Horizons Research Update (2001) (document)

More Horizons publications on youth

More Horizons publications on consequences for individuals, families, and society