RESEARCH SUMMARY

June 2002

Greater Involvement of PLHA in NGO Service Delivery: Findings From a Four-country Study

At the conclusion of the Paris AIDS Summit in 1994, 42 governments issued a declaration supporting greater involvement of people living with HIV/AIDS (PLHA) in policy formulation and service delivery. Despite growing recognition of its importance, there has been little research that examines PLHA involvement in the delivery of prevention, care, and support services in developing countries and its effects on PLHA, others affected by HIV/AIDS, and nongovernmental organizations (NGOs).

To address this gap, the Horizons Program and the International HIV/AIDS Alliance conducted a study of PLHA involvement in NGOs in Burkina Faso, Ecuador, Zambia, and Maharashtra State, India, between October 1998 and August 2001. The goal of the study was to identify the conditions that foster PLHA involvement and the strategies that organizations can use to achieve meaningful involvement of PLHA.

Seventeen NGOs participated in the study, all of which focus on HIV/AIDS prevention, care, and support. The NGOs chosen represent different types of organizations and a range of PLHA involvement, and all expressed interest in the aims of the study.

• Participating NGOs
• Study Methods
• Country Context
• Key Findings
• Conclusions and Recommendations 
• Assessing Progress to Foster Greater PLHA Involvement in Burkina Faso
• PDF format of summary (2.57 MB)

The study investigators are:

United Kingdom-International HIV/AIDS Alliance: Christophe Cornu (international study coordinator and principal investigator); Pam Decho (project support officer); Kathy Attawell (consultant editor)

Burkina Faso: Alfred Ouédraogo (research coordinator); Gisèle Kaboré, Augustin Sankara, Soungalo Traoré (research assistants)

Ecuador: Doris Herrera and Norma Velasco (research officers); Alejandrina Maldonado (research assistant)

India: Rajiv Dua (research coordinator); Vimla V. Nadkarni (principal investigator/technical advisor for India); Bindiya Nimla (research officer); Vaishali Sharma Mahendra (Horizons/Population Council study coordinator) at the regional Horizons/Population Council office in Delhi; Ujwala Bapat, Suchitra Inamdar, Neha Sachdev (research assistants)

Zambia: Tashisho Chabala (research officer); James Sulwe (data collection coordinator); David Mwanza, Justina Namukombo, Eric Shimumbwe, Agatha Zulu Wachinga (research assistants)

United States-Horizons: Christopher Castle (Horizons/International HIV/AIDS Alliance study coordinator)

The project team would like to thank the staff members, volunteers and service users of the 17 NGOs who participated in the study, INP+, NZP+, the staff of IPC (Burkina Faso), Kimirina and CEPAR (Ecuador), the Population Council offices in Burkina Faso and Zambia, and USAID missions.

About Horizons

Horizons conducts global operations research to improve prevention, care, and support program. Horizons is implemented by the Population Council under a cooperative agreement with the U.S. Agency for International Development. Horizons is implemented by the Population Council in partnership with the International Center for Research on Women (ICRW), the Program for Appropriate Technology in Health (PATH), the International HIV/AIDS Alliance, Tulane University, Family Health International (FHI), and Johns Hopkins University.

Copyright © 2002 The Population Council

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See Also

• Population Council – Burkina Faso
• Population Council – Ecuador
• Population Council – India
• Population Council – Zambia
• Population Council – HIV/AIDS

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For additional information please contact: 
Horizons 
Population Council 
4301 Connecticut Ave. NW, Suite 280 
Washington, DC 20008
Telephone: +1 202 237 9400 
Facsimile: +1 202 237 8410 
E-mail: horizons@popcouncil.org 

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This page updated
19 Oct 2007