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To Help AIDS Orphans, Prolong Life of Parents, Population Council Researcher Tells U.S. House International Relations Committee

NEW YORK (30 April 2002) — What can be done to help children affected by HIV/AIDS? According to a Population Council researcher who presented findings to a congressional committee last week, an important approach is to work with parents before their children are orphaned. Programs that prolong the lives of parents and help prepare for their children’s future can help the entire community by elevating the well-being of vulnerable children, said Laelia Zoe Gilborn, M.P.H., a program associate of the Council’s Horizons AIDS Prevention and Care program. Gilborn appeared before the U.S. House International Relations Committee on 17 April to testify on orphans and vulnerable children in Africa.

Gilborn and her colleagues from Makerere University and PLAN International in Uganda designed a research project to determine whether enhanced services that begin when parents are still alive are more effective in improving the long-term well-being of children than those that respond only after parents die. The project is supported by the U.S. Agency for International Development. The primary enhancement within the intervention is a “succession planning” component to help HIV-positive parents plan for their children’s future. This includes assistance in choosing a guardian and in acclimating children to the new guardian, will-writing workshops, legal counseling to avoid “property grabbing,” and income-generating programs for both parents and guardians. This approach was pioneered by the National Association of Women Living with AIDS (NACWOLA) of Uganda.

More than 1.7 million Ugandan children have been orphaned by the epidemic; throughout sub-Saharan Africa, that number soars to 13.2 million. In the year 2000, the Uganda AIDS Commission surveyed sources of outside assistance for orphans and vulnerable children and found that only 5 percent of AIDS-affected children receive support from programs. 

“A wide body of literature tells us that children affected by AIDS are vulnerable in almost all aspects of their lives,” Gilborn noted. “AIDS-affected children often have lower school enrollment rates and nutritional status in comparison to their peers. They have less access to basic health care. They suffer from poverty and emotional distress and are vulnerable to various forms of exploitation.”

Gilborn identified the following priorities for community interventions that target AIDS-affected children:

  • Address the critical health needs of both parents and guardians. Programs that keep parents or guardians healthy are especially helpful. For instance, since tuberculosis is a leading cause of death among people living with AIDS in developing countries, TB prophylaxis and treatment could help give millions of children a few more years with their caregivers.

  • Work with children and their families before their parents die. Succession planning or future planning, in which parents are offered the opportunity to earn income, arrange for guardians, prepare wills protecting their children, and make memory books so that their children will always know where they came from and whom they turn to for help, should be adopted more widely.  

  • Include the community as part of the solution. Families and communities will always provide the vast majority of day-to-day care for vulnerable children. Yet, as the epidemic escalates, families and communities are increasingly strained in their efforts to care for orphans. Local efforts can be strengthened through capacity-building and support for nongovernmental organizations, through faith-based and other community organizations, and through a wide range of development efforts that ensure access to food, safe water, health care, schooling, psychosocial support, and legal assistance.  

  • Train adults to provide emotional support. It goes without saying that seeing one’s parents fall ill and die is very traumatizing for children. Community volunteers, teachers, HIV-positive parents, and guardians can be trained in adult-child communication about difficult issues. Research in Uganda demonstrated that the vast majority of older children want their parents to be honest with them about their HIV infection. They want to do what they can to help, they want to know the truth, and they don’t want to learn about their parents’ infection through gossip. 

  • Expand access to education. Not only does school provide obvious educational and social benefits, but it is enormously important in integrating orphans and children affected by HIV/AIDS with other children and giving them a chance to play and take a break from troubles at home. Eliminating school fees and other school-related costs helps bring these children back to school.

  • Protect the property rights of women and children. In rural Uganda as many as one in four women lose their inheritance—including the roof over her head and the land on which she grows food—when their husbands die. Lawyers, paralegals, and community volunteers are training parents to write wills. These efforts have already helped orphans retain their family property and land, and in some cases to support themselves with small gardens.  

Gilborn concluded her testimony with a word of caution about programs that go out of their way to target and identify AIDS-affected children exclusively. “It is surprisingly difficult to determine which children are affected by AIDS when so few people know or reveal their HIV status,” she said. “Community programs can spend valuable resources on elaborate systems of identifying AIDS-affected children, only to further label them and to leave behind other vulnerable children. Programs that elevate the well-being of all vulnerable children can avoid these pitfalls and help the entire community.”

The full testimony is available at http://www.popcouncil.org/pdfs/gilborntestimony.pdf

Horizons is a USAID-funded global operations research project concerned with HIV/AIDS prevention and care. Horizons works in collaboration with five partner organizations: International Center for Research on Women, Program for Appropriate Technology in Health, the International HIV/AIDS Alliance, the University of Alabama at Birmingham, and Tulane University.  

The Population Council is an international, nonprofit, nongovernmental research organization that seeks to improve the well-being and reproductive health of current and future generations around the world and to help achieve a humane, equitable, and sustainable balance between people and resources. The Council conducts biomedical, social science, and public health research and helps build research capacities in developing countries. Established in 1952, the Council is governed by an international board of trustees. Its New York headquarters supports a global network of regional and country offices. 

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This page updated
19 October 2007